Fragile X, Fragile Hope: Finding Joy in Parenting a Child with Special Needs

Front Cover
YWAM Publishing, 2004 - Medical - 112 pages
For the multitudes of parents facing the challenge of raising a child with special needs, Fragile X, Fragile Hope affirms that they can survive the devastation of the unexpected diagnosis, the lost dreams, the confusion of treatment options, the sleep deprivation, the painful misunderstandings of friends and family--and that more than survive, they can find a way through this chronic stress and grief back to hope and joy. Elizabeth Griffin's stunning, honest book shows how parents can move from profound grief to embracing parenting a special needs child. Elizabeth's son Zack is a Fragile X child with autistic tendencies. Like most families, the Griffin family's prayers were not answered with a cure for their child, but rather with the miracle of God's sustaining grace that carries them through each day. Elizabeth says, We experience so much joy in parenting Zack, despite our heartache over his limitations.... I have to admit that prior to Zack's entrance into my life, I viewed children with special needs as a tragic burden. I remember hearing a speaker on the radio say they wouldn't trade the experience of having a special needs child for anything. I thought, "Liar! You're just saying that to be positive. You don't really mean it!" Now that I've worked through the initial grief, anger, and fear that Zack's diagnosis brought, I have to agree with the man on the radio. There is a deep sense of love and joy that I've found in parenting a special needs child that I never expected, and that I am grateful to have in my life. Fragile X, Fragile Hope helps all of us grapple with our faith in the midst of adversity.

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Contents

Note
11
A Late Bloomer
17
Desperate for Someone to Listen
25
Diagnosis
33
One More Skill One More Connection
39
Special Moms Club
47
Unresolved Grief
55
Turning a Corner of Acceptance
61
Overcoming Bitterness and SelfPity
73
Trusting the Kindness of Others
79
Connecting with Words and Games
89
Ready to Tackle the Next Thing
95
13
105
10
111
Copyright

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